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Cystic Fibrosis Australia (CFA)

CFA is a national not-for-profit organisation and the national body supporting people with Cystic Fibrosis. CFA comprises member State/Territory Cystic Fibrosis organisations. CFA's mission is to  deliver research, advocacy and quality improvement outcomes supporting people with CF and be the peak national body supporting our State/Territory members with their goals to enhance the quality of life of people affected by CF. 

We do this by:

Sharing knowledge
  • Collecting and distributing information about CF at a national and international level
  • Building networks with acclaimed CF physicians, researchers and CF organisations in Australia
  • Organising the biennial Australasian CF Conference
  • Developing educational publications to support CF State organisations in their work
Supporting research
  • Securing funds for the Australian Cystic Fibrosis Research Trust and assembling the professional expertise needed to administer CF research projects throughout Australia
  • Developing a roadmap for CF research in Australia in conjunction with the Australian Cystic Fibrosis Research Trust (ACFRT)
Gathering data
  • Sourcing funding support for, and administering the Australian Cystic Fibrosis Data Registry
Providing advocacy
  • Assisting with developing national policy and advocating for change to bring benefits to people with cystic fibrosis and their families
Promote quality improvement in health care
  • Facilitate the development and review of national guidelines for ‘Standards of Cystic Fibrosis Care’ and ‘Infection Control Guidelines’
  • Resource and coordinate the ‘Peer Review of Cystic Fibrosis Clinics in Australia’
  • Publish the Annual Australian Cystic Fibrosis Data Registry Report for use by clinics and researchers
  • Organising national fundraising campaigns such as ‘65 Roses’ each May to raise awareness of CF and funds for research and education programs and more.
How you can help

Donations and sponsorships are vital to advance research into CF, conduct advocacy and to ensure improvement in health care services available to people living with CF. You can contribute to helping improve the quality of life of those who live with CF by donating today.

Carrier Screening Education Campaign

Almost all children born with cystic fibrosis are born into families where there is no known family history.  Cystic Fibrosis Victoria has launched a Community Education Campaign on Carrier Screening to help create awareness of CF and the availability of Carrier Screening.  For more information, click here.