Parents, Grandparents & Carers Support


Being a parent and/or carer for a person with Cystic Fibrosis is a demanding role involving ensuring treatment and medications are adhered to, advocating for your child’s welfare, and of course just enjoying time spent with them. CFSA recognises the challenges and aims to support parents, grandparents and carers with a range of supports, including information and resources about CF and latest happenings, network support (linking with other parents, grandparents and carers), mum’s/dad’s days out, regular parent dinners, grandparents day out.  and recently diagnosed coffee gatherings, as well as many other activities.

Next Parent Dinner: Tuesday 29 August at 7:15pm at a venue to be advised. CFSA will pay for a main meal and tea/coffee for each financial member. Please contact Robyn at CFSA on 8221 5595 or  to reserve your place.

Next Grandparent Day Out: Saturday 25 November and Sunday 10 December, please register your interest and we'll let you know the details closer to the day. 

Mum's and Dad's Day Out:

The next event for Mums is on Tuesday 4 July at 10:30am  Mrs Le is hosting CF Mum's at a morning tea at Government House, please register your interest now at [email protected] or 8221 5595 and we will contact you with details of parking and entry. Numbers are limited so don't delay.

Parent Dinner