‘Moving on Up’ - Different stages of self-management for children in managing their CF


What is ‘Moving on Up’?

‘Moving on Up’ is a developmentally based self-management program that helps children to develop the skills, knowledge, and behaviours they need to manage their own CF. While young children cannot be expected to assume full responsibility for their CF, over time they can be encouraged to become cooperative self-managers, together with their parents and the CF team. There is a growing body of evidence that children’s involvement in self-management leads to better health outcomes and quality of life, and a reduction in health service use. Our ‘Moving on Up’ program recognises that children can be active participants in their own health care, at any age.


This program was created and is maintained by the paediatric team from the Tasmanian Cystic Fibrosis Service. For more information please contact [email protected]


What resources do we have available?

As there is limited research in this area, we used our collective clinical experiences (doctors, nurses, dietitians, social workers, physiotherapists) to determine what a child is likely to be able to understand and manage in terms of their CF according to their age. A set of fact sheets were developed for ages 0-3, 4-9, 10-13, 14-15, and 16-17 years; these age groups as loosely based on life stages such as infancy, primary school years, early high school years etc.



 Click on each button for information

0-3 pic 4-9 pic  10-13 image    14-15 image   16-17 image   




It is important to recognise that there are several limitations with using an age based approach to self-management. Children are expected to achieve self-management milestones at varying rates, with intervals of rapid progress, versus periods of slower development (often observed during adolescence). The age estimates we suggest can only be used as an approximation for when you, as parents, might begin to see self-management skill development. Children can, and do, achieve milestones before and after our anticipated timeframes. This is not necessarily indicative of advanced or impaired self-management development.


Please remember, each child with CF is an individual learner in regards to their health care.